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Ali Carbone’s Facebook post about her dear brothers, Michael, Anthony, and Luke, carries a powerful message about the ASD community. The 26-year-old’s extensive levels of understanding ASD (autistic spectrum disorder) is all thanks to the uniqueness of each sibling she grew up with.
To commemorate Autism Awareness Day, she took to Facebook to share her truth in a post that has now gone viral, which expresses the importance of compassion and why the ASD community needs our help.
No two Autistic people are alike, and for many, Autism is just the beginning of the developmental and cognitive disorders they will have to deal with throughout their lives. My oldest brother is non-verbal, blind and epileptic. My middle brother is verbal, social and suffers from severe OCD. My youngest is mildly verbal and hyperactive. These traits though, they don’t define them at all.
Michael lives for a good Disney movie throwback and would be content with giving hugs and kisses all day, everyday. Anthony quite literally thinks he’s Michael Jackson and will destroy you in any performance related competition. Luke loves to run and hang outside, and will take every opportunity to mess with his oldest brother.
Along with telling her story, Ali wants to bring awareness to the lack of assistance the ASD community and their families receive.
I also want people to take my post and think about the humans behind the diagnosis. Right now, there are limited housing options for adults with autism. A tough reality for many parents of autistic individuals is, ‘Where will they end up when I die? Will they be taken care of?’ The worry never ends.
At the end of her Facebook post, Ali urges everyone to be kind to everyone, whether it’s a kid or an adult. If they’re out in public doing something the rest of society views as strange, don’t judge them, but accept them.
The story touched people
Carbone’s post, which was shared on Facebook and Instagram, went viral on Facebook with over 3,000 reactions and more than 1,000 shares. Assessing by those numbers, her insight and emotion surely pulled heartstrings.
Parenting kids with autism
Parents commonly spend a lot of time thinking about their children’s future. Moreso, if he or she has an autism spectrum disorder. So, asides the medical care that may be lined to be of help to your son or daughter, these are simple everyday things which can make a difference.
1. Limit communication to 2–3 words phrases
For the children that have limited vocabulary or are non-verbal, try to limit your communication to 2–3 words phrases such as “stand up,” “sit down,” “get the ball,” “lights off,” “bye toys,” as they may not understand what you’re saying because of their communication deficits.
2. Include structure at home
All children with autism need structure. So begin to use a timer for their play and transition them for periods of work, or to the table to eat, or work on a craft. Structure decreases the anxiety of a situation and helps increase their success. This is the foundational block for daycare and school.
3. Hold hands while walking in public places
To demonstrate modeling in public places, we need to ensure that children are learning how to walk in public places and down the halls and are not dashing down the hallways. So begin by standing at the door and saying “Hold my hand,” and begin today to implement this tiny foundational block for yielding success later in life.
4. Seek out therapists
Specifically, those in Occupational/Physical/Speech Therapy, to help facilitate your child’s skills and address various behavior problems. With the diagnosis of autism. There is typically deficits in the areas of sensory processing, attention, grasping development, visual perceptual skills, social skills, communication, and delayed motor skills. Keep in mind that each child is different, though.
5. Find a support group
Receiving the diagnosis of autism, Asperger’s, PDD, or any other diagnosis for your child can be overwhelming, and the best thing you can do is have support from those that have faced the same challenges and gain strength from one another.
You need to believe that all things are possible and to never lose hope. Why? Because you have to keep hoping and be your child’s best cheerleader. Anything is possible if you just never stop hoping.
Ali continues by breaking down the incredible personalities of each brother: